desperate! :o(

hello there

i'd just like some feedback from people who have had the endoscopic sympathecomy. it's my last resort it seems - i've tried everything but to no avail... this is just for my hands (my underarms and feet sweat too but underarms have been cured with driclor and feet don't worry me that much)

if someone could answer me these Q's i'd be a very happy person
1) where are the most common areas of compensatory sweating? can this be determined before the operation (ie would they be able to tell me that i'll sweat "here" if i get such and such a nerve cut)

2) is there ALWAYS some form of compensatory sweating after the sympathectomy? how i see it, is that the sweat must come out somewhere, so if one outlet gets blocked off, it must come out somwhere else - right?

3) is the compensatory sweat tolerable? eg i was thinking that if my hands became "cured" i don't think i'd be as nervous in social situations cuz i'd know my hands would be dry...

4) i posted this somewhere else..and it sounds stupid i know, but it's worth a shot! can't "they" remove some sweat glands from the body so HH sufferers don't sweat as much!? there's got to be some way to get rid of this f*cked up condition! it's impossible to live with!

i'd really love to hear some feedback, particularly from anyone who has had the sympathectomy or anyone that can answer my Q's!
Cheers :wink:

i want 2 get that sooo bad, i simply have no hope unless i get that operation, i hate sweating, i sweat from my face like crazy i drip and drip with not even moving a finger, i dont really care if theres compensatory sweating, all i want is for it 2 leave my face, and ill b cured of SA. Its my physical symptoms that set me back from doing things, mybe i just have hyperhidrosis, lol, but who knows, all im concerned about is the cost of the operation, and if nobody knows about the price, please tell me

hmmm sorry i have no idea how much it costs, and i can imagine it wouldn't be cheap because it is considered a cosmetic procedure :? but that's the last thing worrying me to be honest, cuz my parents will be made to pay for it hahaha! :lol:

jajajaja, thats a good 1, hey i was cheking on some websites and none say the price, but i think its like 6,000 bucks, so now u know so save up some money dude !!!!!!!! LOL AJAJAJA!!, which i dont think is that expensive comparing it 2 other surgary costs, but they said that most insurance companies cover it bcuz its considered a serious medical need, not a luxury, lol, well i just wanted 2 say that, and ask u how old r u ???

lol, i'm 18, female and live in australia. yep still live with my fogies but i think they'd willing pay for this operation if it's going to benefit me. but i don't wanna get the procedure done with any doubts in my mind hey... are you gonna get the ETS done?? the side effects don't sound too lurvely but if it's gonna make my world more comfortable, i don't see why not

if my insurance covers it, i will definetly do it, theres a hostipal here where i live and the doctor sounds pretty good, i dont really care about the side effects, i dont have nothing 2 lose anymore thats my last hope. It would definetly make me more happy, im pretty sure about it. Im also 18 and im male, can i have ur email to talk about this?? bye take care

ive seen the surgeon and gonna get it done (for my hands) on the nhs in uk.
ill tell u what he said
1) where are the most common areas of compensatory sweating? can this be determined before the operation (ie would they be able to tell me that i'll sweat "here" if i get such and such a nerve cut)

if u doing it for your hands like me then u will most likely get compensatory sweating on your trunk i.e the chest and back. the surgeon said most people get some compensatory sweating on their trunk but find it is much more easier to deal with then the hands.

2) is there ALWAYS some form of compensatory sweating after the sympathectomy? how i see it, is that the sweat must come out somewhere, so if one outlet gets blocked off, it must come out somwhere else - right?

according to my research and chatting to the surgeon most people get some compensatory sweating.

3) is the compensatory sweat tolerable? eg i was thinking that if my hands became "cured" i don't think i'd be as nervous in social situations cuz i'd know my hands would be dry...

definately, like me i find it embarrassing and comfortable around fit birds. i cant apply for most the jobs coz my hands always let me down, they always dripping wet and so i dont apply for most of them. i reckon id be much more confident around people and with myself if it is cured through surgey.

4) i posted this somewhere else..and it sounds stupid i know, but it's worth a shot! can't "they" remove some sweat glands from the body so HH sufferers don't sweat as much!? there's got to be some way to get rid of this f*cked up condition! it's impossible to live with!

yeah i have read on some sites about removing sweat glands, but i dont know who you have to contact, but i dont think it is that common this procedure and i dont know why.

i aint advising u to get surgery done like me i think u should weigh the risks and advantages as i did. ask the surgeon how long they have been doing the sypathectomy ,mine has been doing it for 20 years, so im happy to get it done soon. also ask if any of his patient have ever had the side effect of horners syndrome i.e droopy eyelid, my surgeon said none of his patients have. this happens when the surgeon makes a fuck up and cuts higher up the sypathetic chain which makes eyelid always be droopy.

ive seen the surgeon and gonna get it done (for my hands) on the nhs in uk.
ill tell u what he said
1) where are the most common areas of compensatory sweating? can this be determined before the operation (ie would they be able to tell me that i'll sweat "here" if i get such and such a nerve cut)

if u doing it for your hands like me then u will most likely get compensatory sweating on your trunk i.e the chest and back. the surgeon said most people get some compensatory sweating on their trunk but find it is much more easier to deal with then the hands.

2) is there ALWAYS some form of compensatory sweating after the sympathectomy? how i see it, is that the sweat must come out somewhere, so if one outlet gets blocked off, it must come out somwhere else - right?

according to my research and chatting to the surgeon most people get some compensatory sweating.

3) is the compensatory sweat tolerable? eg i was thinking that if my hands became "cured" i don't think i'd be as nervous in social situations cuz i'd know my hands would be dry...

definately, like me i find it embarrassing and comfortable around fit birds. i cant apply for most the jobs coz my hands always let me down, they always dripping wet and so i dont apply for most of them. i reckon id be much more confident around people and with myself if it is cured through surgey.

4) i posted this somewhere else..and it sounds stupid i know, but it's worth a shot! can't "they" remove some sweat glands from the body so HH sufferers don't sweat as much!? there's got to be some way to get rid of this f*cked up condition! it's impossible to live with!

yeah i have read on some sites about removing sweat glands, but i dont know who you have to contact, but i dont think it is that common this procedure and i dont know why.

i aint advising u to get surgery done like me i think u should weigh the risks and advantages as i did. ask the surgeon how long they have been doing the sypathectomy ,mine has been doing it for 20 years, so im happy to get it done soon. also ask if any of his patient have ever had the side effect of horners syndrome i.e droopy eyelid, my surgeon said none of his patients have. this happens when the surgeon makes a fuck up and cuts higher up the sypathetic chain which makes eyelid always be droopy.

Helppppp

Hi,

I suffer from sweating of the hands, feet and underarms. Is there any other treametns avaibale besides surgury. I have had a consultation with a surgent but am concerned about the side affects. Have you ahd your surgery yet?

ive used topical medications, like CertainDri (which works great on my underarms) and DriOff (which is a gel u can apply anywhere but didnt work swell ofr me) and perscription aluminum cholride (which didnt work to well either because it is rather painful with little reults). However, the ones that didnt work for me may work for you because Im guessing my case is severe, seeing as many med.lotions that work for others dont help me much at all.
I also heard about botox helping. Every 6months or so they inject botox into your hands to freeze the sweat glands, but if it gets onto your mucles it can weaken your hands, and i hear it is very painful. There is also an electric pad sort of thing that you put your hands or there affected parts on. i dont no much about that solution, but you may want to look into it too.

LA323 said:

jajajaja, thats a good 1, hey i was cheking on some websites and none say the price, but i think its like 6,000 bucks, so now u know so save up some money dude !!!!!!!! LOL AJAJAJA!!, which i dont think is that expensive comparing it 2 other surgary costs, but they said that most insurance companies cover it bcuz its considered a serious medical need, not a luxury, lol, well i just wanted 2 say that, and ask u how old r u ???

Click to expand...

I am from Turkey. In augost 2005 i asked for the price of the surgery and it costed 1.785$. The hospital is placed in Istanbul İ will go to this doctor in June 2006 to talk. if you want i will inform you later.

ETS is my nightmare

I was a disc jockey--im now disabled thanks to ETS.

and my trip to emergency room monday proved fruitless....the dr's didnt even discuss the surgery as a source of my illness. They didnt even enter it into my medical records. it was simply ignored in a cover-up


http://p069.ezboard.com/betsandreversals

Anonymous said:

hello there

i'd just like some feedback from people who have had the endoscopic sympathecomy. it's my last resort it seems - i've tried everything but to no avail... this is just for my hands (my underarms and feet sweat too but underarms have been cured with driclor and feet don't worry me that much)

if someone could answer me these Q's i'd be a very happy person
1) where are the most common areas of compensatory sweating? can this be determined before the operation (ie would they be able to tell me that i'll sweat "here" if i get such and such a nerve cut)

2) is there ALWAYS some form of compensatory sweating after the sympathectomy? how i see it, is that the sweat must come out somewhere, so if one outlet gets blocked off, it must come out somwhere else - right?

3) is the compensatory sweat tolerable? eg i was thinking that if my hands became "cured" i don't think i'd be as nervous in social situations cuz i'd know my hands would be dry...

4) i posted this somewhere else..and it sounds stupid i know, but it's worth a shot! can't "they" remove some sweat glands from the body so HH sufferers don't sweat as much!? there's got to be some way to get rid of this f*cked up condition! it's impossible to live with!

i'd really love to hear some feedback, particularly from anyone who has had the sympathectomy or anyone that can answer my Q's!
Cheers :wink:

Click to expand...

CS mainly occurs on your abdominal trunk, behind your thighs, and the crotch area and yes there is some form of CS after the surgery. This can be reduced by severing higher up such as T2 to control hand and axilary sweat. The feet tend to improve not b/c of the surgery but because of the reduced anxiety since the hands don't sweat. Hope this helps.

LA323 said:

jajajaja, thats a good 1, hey i was cheking on some websites and none say the price, but i think its like 6,000 bucks, so now u know so save up some money dude !!!!!!!! LOL AJAJAJA!!, which i dont think is that expensive comparing it 2 other surgary costs, but they said that most insurance companies cover it bcuz its considered a serious medical need, not a luxury, lol, well i just wanted 2 say that, and ask u how old r u ???

Click to expand...

I was quoted $7000 by one general surgeon who has performed many of these with the clamp and I was quoted $20,000 at another facility where a thoracic and a neurosurgeon both do the surgery. There is no need for both surgeons to be present but it is merely a political thing. My insurance(HMO) did not cover it since it claims it is cosmetic. Meanwhile people with eating disorders who are overweight gain the 100pounds needed over their ideal body weight in order for their insurance to pay the stomach bypass surgery. I ended up doing the surgery in Spain where my father works at.

I remember exploring this as an option for curing axillary hyperhidrosis and I seem to remember it costing about £3,000, however many dollars that might be. Obviously it is different over here.

I actually had an operation to remove the sweat glands, but this was for axillary hyperhidrosis. In any case, I would not recommend it in a million years. I took me about 2-3 months to recover and the sweating came back a measley three months after that. This and huge scars as well.

I talk about this but I really don't know if it can even be done for the hands!

I have also had botox injections under my armpits and I hope to be able to do this for the rest of my life. In fact, I had my second treatment about a week ago. DO NOT be put off by the thought of pain, it is painful, but it's over within 5 minutes and it's only a needle andit hardly goes in deep at all. You can easily put up with it. I guess in the hands it would be much less painful too. However, once more I do not kn ow if this can be done in the hands, but I see no reason for it not to.

In my research into ETS I have to say that I have never read anyting that identifies a specific region of the body that compensatory sweating occurs. I guess this is the risk of the treatment because nobody can tell you how severe the CS will be and in what places it will be. I have rea horro stories of people having ETS and it ruining their life due to such severe CS. It might be horrible having dripping hands, but imagine that under your arms or on your face or even somewhere silly like your back! I don't mean to frighten you or put you off this surgery, but PLEASE do not go into this lightly.