Joined: May 03, 2005 Posts: 1157 Location: England
Posted: Tue Apr 08, 2008 4:23 pm Post subject: today was so uncomfortable
You know those days where the sweating just won't stop and it feels like your whole body is in meltdown? I swear this is just unbearable. My fingers are wet but my whole hand feels uncomfortable. Both my hands are deep RED in colour and slightly PURPLE.. what the hell? They are also freezing cold to touch but kinda feel like they're burning up inside. So even if my hands were dry I would still feel uncomfortable. My whole body temperature feels un-even. Still got the usual bullshit mild sweating on my brows, arse, underarms, feet feel like they've been placed in an oven. Tbh I can deal with that but I can't deal with these alien hands.. lol. We use our hands for everything so you know what this feels like. Iontophoresis is so inconsistent. I pray to god this glycopyrrolate cream does something. If only, IF ONLY we could just go into the operating theatre, come out and be cured. We're damned if we do and we're damned if we don't. Sometimes I feel like we need a miracle.
yeah i know what u mean also. when my hands are dry, they begin to feel real hot even if theyre not sweating. what the hell? lol. also, the sweat compensates on my ass too lol. but pinker, i thought u said u were back to being sweat free on the hands?
Joined: Oct 07, 2004 Posts: 32 Location: United States of America
Posted: Wed Apr 09, 2008 12:24 am Post subject:
sorry man, I feel your pain! HH has become such a part of my life over the past 5 years, and I feel ridiculous. I am always hot and sweaty, yet my skin is cold and clammy....I feel like I am weaning off heroin. I haven't felt comfortable in my body for such a long time. Since my HH is generalized, the most I can hope for is some relief on my hands/forehead. I am always looking for new treatments, don't give up![/i]
Joined: May 03, 2005 Posts: 1157 Location: England
Posted: Wed Apr 09, 2008 12:33 pm Post subject:
Today my hands are a lot lot drier, it's ridiculous compared to how they were yesterday when I wrote this. The day before yesterday I did a treatment on my hands at night, so for some reason this is what made my hands go like crazy again. This is what I mean about the problems with iontophoresis, that we dont know exactly when is the best time to do a treatment. Anyway I still roll on driclor onto my fingertips which helps after using it for a few consecutive days, but i'm hoping *if* I can get glycopyrrolate cream it will be a lot stronger. *Sigh*
I thought you were scheduled to see your GP today, any word yet on the glyco cream?
Anyway, as for me, the hospital would call between 1230 and 1330, but they didn't so I called them at 1430:
H: Yeah, our department is in the middle of moving to another place, I can't see your appointment here anywhere and I can't access our files at the moment. The doc left so I can't ask her either. We're very sorry, I'll have her call you on friday.
*sigh*
Well, it could be I'll have her call you in 2 weeks/months, so I guess it could be worse, still I've been is this medical system actively for over 2 years (after already having been told years before there was nothing to do about HH) now and accomplished very little, even things that you think WHAT THE HELL how can you ever justify NOT to do this.
Anyway, for some reason that is beyond me I still overall feel that somehow there's going to be something good. Then again, realistically that's nothing more than my mind fooling me to be able to keep going with this stupid situation.
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