Pulse radio frequency sympathectomy instead of ETS

Theo55 · Posted: Sat May 31, 2008 2:59 pm Post subject:

Cheers Scruffpot,

When I discovered that I had this conditon, I felt so lonely and thought that I must be one in a million to have it, but it turned out more common than I thought.

I am in Manchester mate , I dont have underarm sweating but my hands and feet are really off putting.How long did you have to wait for the operation ? Heard that CS is a serious problem but i wouldnt mind it if it is on my back and the back of the legs.

scruffpot · Posted: Sun Jun 01, 2008 8:05 pm Post subject:

hi, hows you? sos to hear you have a problem with HH, its pants when you realise that you have a HH problem, but you do everything to fit in as normal, but there are loads of us out here, generally hiding away but we are all here Smile

I waited about a month to get my op I had it done on the NHS. But i went through consultants, doctors nurses and other peeps to help me decide what was the best option to go with.

With CS it is not garunteed that it will be there or where it will appear, be it on back legs, underarms, feet etc. That is a gamble if you decide to have any op, thats what the docs are there for to talk to you about it.
My op wasn't ETS it still was a sypathetic block but less obrusive and as painful.

A lot of people will say dont go for any ets or otherwise surgery as there are complications e.g see http://etsandreversals.yuku.com
for example, but some people will do, there isnt much research regarding why we all sweat as much as we do, and what we do to conrol it. I know I had a different surgery which has seemed to have improved my life, but it may do for you it may not. what i had was Pulse Radio Frequency sympatectomy. talk to your docs about it and see if you can get reffered to a pain clinic in a hospital (thats what I had mine done through).
However don't rush into anything, never mind how bad a sympton is, as i said it could work it might not.

scruffpot

beckiboo · Posted: Mon Jun 09, 2008 6:24 pm Post subject:

Hey scruffpot, wow! this sounds interesting, I have HH bad in the hands and feet, im cautious about having ETS because it is so invasive and having heard some horror storys about the CS being worse than the origional problem, but this sounds alot more delicate and ill most certainly be mentioning it to the nurse at my next iontophoresis session (ive just started this treatment and im on the 5th session-no improvement as yet...) thanks for posting this, at least it is another option to think about! Laughing

scruffpot · Posted: Thu Jun 12, 2008 3:37 pm Post subject:

have a chat with the nurses docs and the consultants about PRFS, so far it seems to be ok dtill for me. i ahve no idea what it would be like for you. problem is if you do go for the op and it works Brilliant, if it doesn't well unfort there isn't much you can do. But it is just an idea and defiantly worth chatting to the nurse about. if they need to know anymore get them to ahve a look at my xrays online or email me through this site

scruffpot

_________________
Forget all religions and silly silly Scientology join my cult of randomness instead
http://www.cultofrandom.com

Pinker · Posted: Wed Jul 02, 2008 12:58 pm Post subject:

I wonder if another name for this procedure is electrocautery.

Very small reference to it in this article: http://www.sweathelp.org/English/HCP_Treatment_ETS_Surgery.asp

scruffpot · Posted: Wed Jul 02, 2008 9:11 pm Post subject:

oooh thanks for the heads up on that article very interesting indeed. It is that proceedure or somthing similar I had done.
But so far it has stopped a lot of sweating I think i have improved about 70%
I can sit around in a tshirt and just keep dry
I ahve to get a follow up consultation booked in a few weeks.

bex · Newbie User Joined: Jul 18, 2008 Posts: 3

scruffpot · Posted: Tue Jul 22, 2008 8:24 pm Post subject:

howdy bex sure I'll try and sort out some info for you f I can find some , my email is marmite57@hotmail.com i should be online most of the time lately, as Ive trapped nerves in my spine (that will teach me to go to the gym )and off work for a bit so if you have msn add me

scruffpot

bex · Newbie User Joined: Jul 18, 2008 Posts: 3

hi thanks for that i will add you to my msn so next time your online we can chat if you like any advice would be alot of help talk soon.

rambo87 · Newbie User Joined: Jul 21, 2008 Posts: 18

hi scruffpot, could you tell a bit more about your sweating before and now? i read that you said it has improved by 70%, but does that mean that you arent bothered by it anymore, or could it have been better etc? also do you know anything about any other cases, that maybe you have a high improvement percentage in comparison or maybe you have lower?

thanks for sharing this by the way! Wink