Posted: Wed Sep 01, 2004 7:36 pm Post subject: ETS for blushing ~ its days are numbered.
There are 2 purposes to this message.
The first is to let you know that the Radisson Group of dissatisfied British/Irish sympathectomy patients is meeting in London, w1 on saturday 4th September
The second is a general warning to not allow surgeons to destroy you with ETS, which is falsely touted as a cure for sweating, blushing, social phobia etc etc etc
Posted: Sun Jun 04, 2006 12:26 pm Post subject: ive had it
hi just thought i would let you know i have had the surgery and i will vouch for it, it has definetly changed my life i can talk to people now without fear of blushing. i will say the side effects for me are nothing that bad but the dry palms of your hands is a bit annoying but its something i will get used to. i DO NOT recommend the surgery to light sufferers of blushing and would advise anyone to find other means of a cure before having this done . but as i said its a great surgery and i even got it on the NHS which was great because i could have never have afforded it. all this talk about doctors telling you its a cure is complete rubbish they told me many times all the possible side effects and were constantly asking if i had any questions and that i could back out any time. for me this surgery is a great thing and there are always others that suffer side effects worse but go get an appointment with your GP and he will refer you to a surgeon that will talk you throu it, and if you dont like the sound of it dont go ahead with it.
Hi,
I've been reading about this and seriously considering it.
To the person that had it on the NHS. Did you have any problem with your GP putting you foward?
I asked my GP some years ago and was told, "No". Said it was a bad idea, I didn't need it, and couldn't get it on the NHS
Reading on it today I see things have improved, but to the last lady to post, you say you still 'felt' like you were blushing, but looked in the mirror and were not. That must have been a great relief, but for me the biggest part of the problem is the 'feeling' of blushing. I read today that a level 3 'T3' I think, operation, severs the nerves that also cause the feeling of warth/tingling assotiated with blushing, or have I got it wrong?
Please, keep us updated to your progress with this treatment.
Side effects of sympathectomy may include decreased blood pressure while standing, which may cause fainting spells. After sympathectomy in men, semen is sometimes ejaculated into the bladder, which may impair fertility. After a sympathectomy done by inserting an endoscope in the chest cavity, patients may experience chest pain with deep breathing. This problem usually disappears within two weeks. They may also experience pneumothorax (air in the chest cavity).
There is much disagreement among ETS surgeons about the best surgical method, opitimal location for nerve destruction, and as to the nature and extent of the consequent primary effects and side effects. The internet now features many websites run by surgeons extolling the benefits of ETS backed by happy patient testimonials. However, there are also many websites run by disabled ETS victims who complain of severe complications and lack of adequate informed consent. Several online discussion forums are dedicated to the subject of ETS surgery, where both positive and negative patient testimonials abound.
In 2003, ETS was banned in its birthplace, Sweden, due to overwhelming complaints by disabled patients. In 2004, Taiwanese health authorities banned the procedure on patients under 20 years of age.
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pub med:
CONCLUSION: The results of endoscopic sympathectomy deteriorate progressively from the immediate outcome.
Posted: Tue Sep 19, 2006 6:44 pm Post subject: Re: ive had it
gmetal_06 wrote:
hi just thought i would let you know i have had the surgery and i will vouch for it, it has definetly changed my life i can talk to people now without fear of blushing. i will say the side effects for me are nothing that bad but the dry palms of your hands is a bit annoying but its something i will get used to. i DO NOT recommend the surgery to light sufferers of blushing and would advise anyone to find other means of a cure before having this done . but as i said its a great surgery and i even got it on the NHS which was great because i could have never have afforded it. all this talk about doctors telling you its a cure is complete rubbish they told me many times all the possible side effects and were constantly asking if i had any questions and that i could back out any time. for me this surgery is a great thing and there are always others that suffer side effects worse but go get an appointment with your GP and he will refer you to a surgeon that will talk you throu it, and if you dont like the sound of it dont go ahead with it.
hi i would like to take ETS operation, but themain problem is that i have no money for it, do u know how i can find somebody who could support me financially? please send me any information, thanks robert
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