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Social Phobia World :: View topic - Pulse radio frequency sympathectomy instead of ETS
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Pulse radio frequency sympathectomy instead of ETS
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scruffpot
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Joined: May 16, 2008
Posts: 75
Location: in the uk south west

PostPosted: Fri May 16, 2008 8:19 pm    Post subject: Pulse radio frequency sympathectomy instead of ETS Reply with quote

hello all, im new to this forum but have had hyperhydrosis for a very long time since i was 13 now im 28 and had finally had enough and decided to go for an operation.
at the consultation I got offered 2 types of surgery one was ETS but another was Pulse radio frequency sympathectomy, so i decided to try that because it is not as painful or inrusive as ETC, and you and you are in and home in 3 hours plus the sedation is brilliant Smile

They just zap you T2 t3 t4 nerves with radio frequencies in attempt to damage them by inserting a needle in 3 places in your spine. it is dangerous as it is close to the lung and they don't deflate it but it isn't as bad as ETS.
the ganglia's can grow back but slightly different, so it isn't really damaging your body and so far it seems to ahve worked.
I would recomend it to someone who isnt sure about ETS ask about what i had next time you visit you doctor.
there are some side affects to ETS and PRFS as in sweat else where but so far so good.
See pics of my xray
http://i31.tinypic.com/242ybeo.jpg

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blong
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Joined: Apr 29, 2008
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Location: Virginia, USA

PostPosted: Sun May 18, 2008 3:33 am    Post subject: Reply with quote

sounds like they are finally figuring out ways to revise and make ETS better. Maybe one day it will be safe and effective enough (with no side effects) to be a viable option for most HH sufferers. I sure do hope so


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scruffpot
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Joined: May 16, 2008
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Location: in the uk south west

PostPosted: Sun May 18, 2008 11:59 am    Post subject: Reply with quote

yeah that is ture, i can see why. i was told about ETS, but the consultant did a quick google check (thanks google) and came up with this idea instead. so i thought why not i'll try anything.
Plus it was easier to do and simplier, my back is still sore in a few places he might of hit something else and made it sore but tis worth it but i'm going the gym and get back into being fit again. if anyone wants to know more please get in touch

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Alvinsduckie
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Joined: Nov 03, 2005
Posts: 71
Location: Tx

PostPosted: Wed May 21, 2008 2:05 am    Post subject: Reply with quote

wow 0_0

so much info..could i talk u into posting this over at

http://etsandreversals.yuku.com/
?

God bless u for your strength, the more we know the better

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scruffpot
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Location: in the uk south west

PostPosted: Wed May 21, 2008 3:21 pm    Post subject: Reply with quote

just to let you know ive joined that group forum and posted the same thing over there as well.

anybody else know much about PRFS?

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Pinker
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Joined: May 03, 2005
Posts: 909
Location: England

PostPosted: Wed May 21, 2008 5:30 pm    Post subject: Reply with quote

Very interesting, though it's gets a bit over my head when we're talking about the T1,2,3 etc..

Did you have hyperhidrosis of the hands scruffpot? Was it done on the NHS?


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scruffpot
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Location: in the uk south west

PostPosted: Wed May 21, 2008 5:41 pm    Post subject: Reply with quote

this web site explains the basics of t ganglions
http://my.execpc.com/~crawf/ideas.htm
yes it was done on the nhs I was referd by my doc to my local hospitall and the surgery was performed via the pain clinic
had hydrosis of axillary and some on the hands but i wasnt too worrid about palmar just axillary

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Theo55
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Joined: May 28, 2008
Posts: 27
Location: Manchester

PostPosted: Wed May 28, 2008 1:07 am    Post subject: Reply with quote

Hi scruffpot !

So how did you ask your doctor , because everytime I talk to him he seem to ignore me.
Can I just ask did you have palmer HH as well or was it just the underarm , and how is the result after the operation

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scruffpot
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Posts: 75
Location: in the uk south west

PostPosted: Fri May 30, 2008 8:58 pm    Post subject: Reply with quote

ok, right now did i ask the doc? I just went there and told them. im not embarrassed easily so i thought to myself, well docs have a lot of people to deal with and with worse things so I just went ahead and had a word.
there are a few docs who couldn't actually care so if one doesn't take it seriously then find a another who does. and so on till you get an awnser, but don't just get one awnser get different opinions.
where are you, city country wise?
yeah things have improved i think, haven't had much CS, only on back of legs but i wear shorts all the time.
plamar and axillary - axillary was the worst.

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Theo55
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Joined: May 28, 2008
Posts: 27
Location: Manchester

PostPosted: Sat May 31, 2008 2:58 pm    Post subject: Reply with quote

Cheers Scruffpot,

When I discovered that I had this conditon, I felt so lonely and thought that I must be one in a million to have it, but it turned out more common than I thought.

I am in Manchester mate , I dont have underarm sweating but my hands and feet are really off putting.How long did you have to wait for the operation ? Heard that CS is a serious problem but i wouldnt mind it if it is on my back and the back of the legs.

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