Robinul/Avert/Glycopyrrolate

totallysoaked · 06-21-2009, 07:49 PM

Hey guys, I got some questions that need answers!

I'm going to the doctor in a week, and we are going to talk about my HH and what meds I could possibly get, and I REALLY want Glycopyrrolate!

I am 6'2'', 170 lbs, pretty skinny, and have a pretty fast matabolism. Ever since I can remember, my face has always been a little red, but not horrible. It just gets flushed when I'm super hot or something. But, I have read that facial flushing/blushing is something that comes along with HH.

I have HH of the palms, feet, and GROIN! The groin is my most embarrassing for sure!!!! I just want my groin and hand HH GONE!

So, I'm wondering if Robinul/Avert/Glyco will stop this sweating completely when I'm on the meds? Will it make my face really red and hot? I'm a little scared about building up a tolerance to the drug, and it bums me out! I'd only be taking it 4-5 times a week, for school. I wouldn't on weekends and breaks.

Have you built up a tolerance to it? Let me know, anything helps!

Peace and love.

margiehope · 06-21-2009, 08:02 PM

I have been taking glyco for about 3 years now, and have NOT built up a tolerance. Mind you, I adjust the dosage, taking less or none on cool days, or ones when I'm not doing much.

On the hottest and most humid days, I still perspire a little--but that's OK. I do get red in the face, though. Still, I prefer it to the old days of soaking wet-carrying a facecloth around--looking and feeling like a complete dork!

totallysoaked · 06-21-2009, 08:08 PM

This is promising! Thanks for your reply!
Is your red face really noticeable? I'm thinking when I start the medication I'm going to carry ice cold water around and little candies to keep my mouth dry...what do you think?

margiehope · 06-21-2009, 10:45 PM

I think my red face IS noticeable, but that's mostly when I'm exercising, so I think I get away with it.

The hard candies are a good idea, and ice water is a good idea anyway!

totallysoaked · 06-22-2009, 07:20 PM

Oh, well what about when you aren't exercising? Like when you're just sitting down, would it be really red if I was just sitting down in class?

I guess that's a small price to pay for dryness.

margiehope · 06-22-2009, 09:53 PM

No it isn't red just sitting--it might be, I guess, if temp and humidity was sky-high, but I hope your classrooms aren't like that. Mostly it's fine. Trouble is that HH is SO individual--what happens to me isn't necessarily what will happen to you.

Good luck!

hyp-hi · 06-23-2009, 01:07 PM

Depending on how much you take, it may or may not make you completely dry. For me, I take 2mg in the morning. This may not stop sweat completely, but it does help. I find if you start taking more, that when you start getting side effects like dry mouth and eyes.

I have not noticed and redness of the face or skin while taking it. As far as tolerance build up, again, it's not noticeable, but like you plan, I only take it when I think I will need it.

bigchris · 06-23-2009, 09:35 PM

The doctor wouldn't give me robinul but gave me ditropan instead which is basically a ****ter version. It sometimes feels like my face is really red and I look in a mirror and I'm not that red, people don't notice or comment on it at all. I really wouldn't worry about that.
Personally I have only heard positive things regarding robinul, and also to do with build up, can you avoid taking it on weekends? I agree you should alter doses and not take it at all to avoid resistance. I took 1 tablet of ditropan today (thats sometimes a quarter of what I used to take) after 4+ weeks of not taking it, it was one of the hottest days in a long time and I was fine.

margiehope · 06-23-2009, 10:31 PM

Don't know any down sides to ditropan, so if it works well, I'd stick with it. (But have never taken it.)

Curious--did your doctor give reasons for no robinul?

Phantom · 06-24-2009, 07:02 AM

i posted a similar post. im havin a doctors appointment tomorrow and gonna talk to my doctor about robinul. i have a feeling he might not let me take it because he called me a few days and said there were was to many side affects like dizziness, fainting, etc. but from what ive been reading online, mostly everyone doesnt have those side affects except dry mouth which IS a small price to pay. i have truncal HH too and starting school soon like you. Im goin to a school thats about 8 hours long this summer for a year and has those "black plastic seats!". Im scared... really scared. i kinda have IBS too and im hopeing robinul will treat or cure my HH and IBS all at once. i hope this week WILL be the week where i finally find a treatment for HH. good luck to you