WARNING: PLEASE DO NOT HAVE ETS FOR EXCESSIVE HAND SWEAT!!!

mazegate

mazegate

Member
http://www.truthaboutets.com

http://www.no-ets.com

http://www.etslawsuits.com

http://www.ets-talk.com (or) http://p069.ezboard.com/betsandreversals

This surgery is not worth the PERMANANT damage to your health. Do not listen to what the ETS "doctors" will try to tell you. They will downplay the potential side effects. Some will even flat out LIE. Compensatory sweating occurs in 100% of all ETS patients, regardless of what the surgeon claims. Think about it, your sympathetic sweat-nerves are interupted, this does not mean you stop sweating, it just means it will get displaced. This could be a disaster depending on how much you normally sweat on your upper body, which becomes bone-dry because of ETS (at least for most ETS post-ops, which can never sweat anymore on their head and face- even in extreme heat & humidity).

Scary, strange and bizarre side effects occur in most patients many years later. Here are some of the most commonly reported:

Chest pains
Sharp pains in the heart
Constant headaches
Urinary incontinence
Severe acne
Severe dandruff
Trouble breathing
Stuffy nose
Dry burning eyes
Chronic fatigue
IBS
Eczema
Scabs on head
Scalp sensitivity
Facial flushing
Unusually fast heartbeat during physical exertion (almost feels like you're about to have a heart attack)


By the way please note that even though your hands will no longer sweat, this doesn't necessarily mean that you're "cured" of the problem. Now they will be SOOO extremely dry that it's uncomfortable. You might not think so at first, but wait many years later when they are STILL always bone-dry and you're sick of always applying moisturizer (which annoyingly always seems to get everywhere: on your food, clothes, etc.) and sick of having that fingernails on the chalkboard chill in your spine whenever you handle anything dry like cotton clothes, paper, etc. etc. etc. Your hands will always feel like there's a dead layer of skin covering them. And if you live in a dry desert (or high altitude) climate you will really be sorry. AND no matter where you are, the dry winters are brutal.

PLEASE STAY AWAY FROM ETS. YOU WILL REGRET IT IF YOU HAVE THE SURGERY (IF NOT RIGHT AWAY, THEN MANY YEARS LATER). HEED MY WARNING FOR YOUR HEALTH'S SAKE. THANK YOU FOR READING........
 
yamilrx

yamilrx

Member
Thanks for the warning!!

Just wondering how long ago you had the surgery. I had it 1 month ago and so far I am happy. Not to lie to anyone but the dry hands is true. They are less dry than if you use the drysol for a week straight. I feel like a new person since the surgery. The CS is not bad, today I went back to Kung Fu out in a park in S. Florida and yes I had some sweating in my back and stomach but nothing too abnormal. I had some chest pain the first week of the surgery and in the areas where the scars are I still have muscle pain specially when I workout. This I am hoping will go away in time. I have less anxiety, foot sweating, and less armpit sweating to the point that I use zero deodorant. Hope others can share their sideeffects after ETS.
 
mazegate

mazegate

Member
Re: Thanks for the warning!!

I had ETS over 6 years ago... It wasn't until around the 3rd year after the surgery that I started to realize that I had made a really bad decision. The effects of not being able to sweat on my head was really beginning to take it's toll (at first I thought I would eventually start sweating again, at least a little bit). Excessive dandruff due to the complete inability to sweat and generate oils on my scalp, is very socially embarrassing (dandruff shampoos don't work). Also the bone-dryness of my scalp makes it sensitive and causes tiny scabs to form. My face is always so dry I have to use moisturizer on it daily, otherwise it feels tight and scaly. Plus pieces of dead skin constantly fall off my face, which is also VERY embarrassing. Also I get bizarre acne breakouts on my nose constantly. I guess this is the absolute worst side effect from ETS for me- not being able to sweat from the neck up. For others it's the compensatory sweating in their lower body, even in mild heat. Some people don't even have a problem with compensatory sweating till a couple years later. I guess ETS effects everyone differently. By the way one of the scariest side effects have been sharp stabbing pains near my heart, which started about 3 years after ETS (and continues to this day). Considering I did not have this problem, ever in my life before I had the surgery (and no history of it in my family) I don't know what else it could be- Other than another side effect of ETS. Go type in "ETS side effects" in Google and see what you find. This surgery really should be banned worldwide in my opinion. It's already starting to happen in small parts of Europe and Asia. There are many MANY other problems from ETS that I could blabber on about, but I don't think anyone cares...
 
mazegate

mazegate

Member
Re: Thanks for the warning!!

By the way, they say ETS interupts some of the normal blood flow to the heart. This is probably the root cause of why I have sharp heart pains..
 
yamilrx

yamilrx

Member
Actually your comments/response are appreciated. I was hoping not to hear that those side effects may come out 3 yrs or so later. I had a weight workout yesterday and I noticed that I was able to sweat on my forehead. This was actually good news to me as I figure my scalp may not get dry. Of course I only had it one month ago.
 
mazegate

mazegate

Member
So if you can still sweat on your head then consider yourself one of the lucky ones. Not being able to perspire from the neck up leads to all sorts of other bad side effects, which you obviously won't have if you can still sweat up there. Do you know what section was cut/clamped? T2, T3, T4?

How much research did you do about ETS before you actually went through with it? Back when I had it, I didn't see any negative comments about ETS, or else I never would have went through with it. Especially considering how widespread the adverse side effects are now reported. All I knew about back then were the doctor's websites, and those are all biased in my opinion. Not like these kinds of real world forums.
 
jeff123

jeff123

Member
I remember when I first got axillary hyperhidrosis that my utterly incompetent "doctor" told me he was going to cut the nerve at a point I was to find out, through looking on the f'ing INTERNET was completely wrong, and this was later confirmed by the man in Britain with the most experience in ETS surgery as being a HUGE mistake.

Thank god I had already had one bad operation with this man already and didn't trust what he was saying!

This is an example of just how it easy it is for this operation to ruin your life.
 
yamilrx

yamilrx

Member
mazegate said:
So if you can still sweat on your head then consider yourself one of the lucky ones. Not being able to perspire from the neck up leads to all sorts of other bad side effects, which you obviously won't have if you can still sweat up there. Do you know what section was cut/clamped? T2, T3, T4?

How much research did you do about ETS before you actually went through with it? Back when I had it, I didn't see any negative comments about ETS, or else I never would have went through with it. Especially considering how widespread the adverse side effects are now reported. All I knew about back then were the doctor's websites, and those are all biased in my opinion. Not like these kinds of real world forums.
Click to expand...

I am in the healthcare field and spoke to several surgeons at the Hospital I work at. I actually did a lot of research and had been tracking these surgeries at the Hospital my father works at in Spain. He initially discouraged me because of the extent of the surgery. They were actually going to try the clamp with me but they hadn't done many surgeries with the clamp so they didn't. The whole issue with clamping and them being able to reverse the surgery is kind of a lie which hasn't been tried extensively. Once you clamp the nerve after a few months you damage it b/c of the lack of oxygen and physican damage done by clamping. I had the nerved severed(not clamped) between T2-T3 and the surgeon told me the foot sweating is not supposed to stop based on my surgery but merely b/c of the hands not sweating anymore this decreases anxiety and helps the foot sweating. The surgeon discouraged me from anything about foot sweating due to increased risk of worst compensatory sweating. What I tell others is to do extensive research and if they are going to go ahead with the ETS to make sure they use a surgeon who has extensive experience.
 
mazegate

mazegate

Member
In my opinion, I don't think having a surgeon with little or alot of experience matters that much. ETS itself is an inherently dangerous procedure regardless of how well it's done. I mean vital nerves are being permanantly severed. From my understanding these nerves even play a small role in maintaining normal heart function.....Now THATS alarming. Yes with a less experienced surgeon things could be alot worse, perhaps he could damage something else while messing around in there. But even with a surgeon thats done hundreds of these (like the one I had) side effects are still 100% possible. Just how bad they are depends on how the ETS 'victim' reacts to them. Those sympathetic nerve connections were mapped out there by human evolution for a reason. I think they should not be interupted, especially for a trivial or 'cosmetic' problem that is not life threatening. Too bad I was so stupid back then to not realize this. I thought I found a cure for this social problem of mine, and I guess I became delusional. EVERYDAY I still regret it.

By the way I'm going to take a break from coming to these types of forums for awhile, mainly because I just want to focus my time on other things, finances being one of them.... Plus try to get my mind off of my health problems and "TRY" to be more productive in general. I just wanted to warn people about this surgery. I hope it keeps at least ONE single person from going through with it................
 
A

Alvinsduckie

Well-known member
takin a break

hey Mazegate--

glad to hear you are going to take a break and try to get life back to where you feel it needs to be. I've decided to dedicate just 1 hr a day to ETS whether its forums or sending emails. I feel stressed if i ignore ETS too much..or too little. I still believe we make a small difference to those seeking ETS. I feel if i quit posting..then its as if the surgeons have won. (gee--we put her on disbility--but she proves she can live a normal life post ETS) which we know is untrue...and i refuse to give them victory--as well as refusing to admit defeat.

basically i'm going for balance,what makes me happy and to hell with the rest! :lol:

kudos to you for hanging in there and being tough, take care:-*
 
lmizrany

lmizrany

New member
My Name is lisa and about 4 years ago I had the surgery! I now agree it was the biggest mistake of my life, I sweat everywhere now and my hands have started back, I have no energy and many times have passed out in pubic, feeling an overwhelming Hot sensation, when my hands are not sweating they feel as of they are on fire I cant pick up anything they are paby power dry! I cant operate small things like cell phones and remotes! My eyes are constantly on fire and its stressful to see. I tried to contact the doctor who did the surgery but unless I wanted to travel to texas again He had no help to offer me! I am constantly hot/cold at the same time and practically live off excedrins! Before this surgery Sweating was my only problem! I only wish I could say that now. You will regret this surgery years later when as the damage from that nerves begin effecting the other parts of your body, And it never gets better only worse So My Words to you If You are considering the surgery! DONT!!!! Its not worth the side effects that come on years down the road. Many people have stated this I can only testify that what ive read is all true! For I have had the surgery and at first thought how great it was! Only to find out it wasnt great at all. I made a big mistake I only hope that I can stop just 1 person from making the same mistake.
I understand its horrible to have soaked hands and feet! But the feet sweating gets twice as worse immidiately, Your hands feel like fire and your constantly using lotion to turn a page in a book, You cannot hold on to things for your so super dry! Being wet you probably say that would be ok??? Its not and through the years the stabbing chest pains and persistant sweating all over your body You can feel heat from the bed while you sleep, as if your in a bed of fire! You have no energy and tire easily! Its not worth it! Not to stop the sweat! There is things on the market like dri sol Ive heard works Try these other options before ruining your life as I have done with this surgery.[/i]
 
R

**removed**

Banned
lmizrany said:
My Name is lisa and about 4 years ago I had the surgery! I now agree it was the biggest mistake of my life, I sweat everywhere now and my hands have started back, I have no energy and many times have passed out in pubic, feeling an overwhelming Hot sensation, when my hands are not sweating they feel as of they are on fire I cant pick up anything they are paby power dry! I cant operate small things like cell phones and remotes! My eyes are constantly on fire and its stressful to see. I tried to contact the doctor who did the surgery but unless I wanted to travel to texas again He had no help to offer me! I am constantly hot/cold at the same time and practically live off excedrins! Before this surgery Sweating was my only problem! I only wish I could say that now. You will regret this surgery years later when as the damage from that nerves begin effecting the other parts of your body, And it never gets better only worse So My Words to you If You are considering the surgery! DONT!!!! Its not worth the side effects that come on years down the road. Many people have stated this I can only testify that what ive read is all true! For I have had the surgery and at first thought how great it was! Only to find out it wasnt great at all. I made a big mistake I only hope that I can stop just 1 person from making the same mistake.
I understand its horrible to have soaked hands and feet! But the feet sweating gets twice as worse immidiately, Your hands feel like fire and your constantly using lotion to turn a page in a book, You cannot hold on to things for your so super dry! Being wet you probably say that would be ok??? Its not and through the years the stabbing chest pains and persistant sweating all over your body You can feel heat from the bed while you sleep, as if your in a bed of fire! You have no energy and tire easily! Its not worth it! Not to stop the sweat! There is things on the market like dri sol Ive heard works Try these other options before ruining your life as I have done with this surgery.[/i]
Click to expand...

I'm sorry to hear of the trouble the surgery has caused you :( Hopefully there will be advancements in the near future to restore the damage caused to the sympathetic nervous system and bring it back to its normal state.

I praise you on posting your story on here though, we need more people like you!
 
You must log in or register to reply here.
Top