Scoliosis - anyone else ?

[diesel]

on wednesday i was diagnosed with scoliosis . was wondering if anyone else here has it ?

for anyone who doesnt know its when your spine twists and curves instead of growning strainght . it causes pain , bad posture , artheritus in the spine , depression , digestive problems and it looks really bad too .

i must admit even though i knew like it still hit me hard when the doctor said it to me . for the first time in a long time i felt tears swell u behind my eyes but i controlled my emotions . funnily enough the doctor is the same one that performed the operation on me when i was like 7 days old . unfortunately there is no cure for it and the best i can hope for is to slow down the process .

even writing about it is upsetting because it makes it more real but i have it and thats that . i am being sent to a spine surgeon and have to get an mri too . i am scared i must admit but the diagnosis has done something to me , its as if something inside broke and i do feel different since .

also the doctor said my lung and heart are in good condition which is good news and then said i have 40 years left - im only 19 like , that hit me emotionally too . life is like one kick in the balls after another for me , i really am sick of it at this stage .

 

[Tiercel]

I don't have scoliosis, but I was born with a clubfoot. Several operations when I was quite small generally fixed it, but my right calf has always been about half an inch or so shorter than the left.

So every few years when they'd do the scoliosis screening at school, I'd always be flagged since I was basically always standing crookedly. It always checked out okay, but I was always afraid that things might have changed since the last time I was checked.

So as one with a structural deformity myself, I can empathize with you, diesel. I can only imagine the difference in severity of having problems with one's spine as opposed to one's ankle, though. And I wish you all the best.

And make those 40 years count! If you think scoliosis is bad, wait until you have years of regrets to go with it.

 

[The Nephilim]

on wednesday i was diagnosed with scoliosis . was wondering if anyone else here has it ?

for anyone who doesnt know its when your spine twists and curves instead of growning strainght . it causes pain , bad posture , artheritus in the spine , depression , digestive problems and it looks really bad too .

i must admit even though i knew like it still hit me hard when the doctor said it to me . for the first time in a long time i felt tears swell u behind my eyes but i controlled my emotions . funnily enough the doctor is the same one that performed the operation on me when i was like 7 days old . unfortunately there is no cure for it and the best i can hope for is to slow down the process .

even writing about it is upsetting because it makes it more real but i have it and thats that . i am being sent to a spine surgeon and have to get an mri too . i am scared i must admit but the diagnosis has done something to me , its as if something inside broke and i do feel different since .

also the doctor said my lung and heart are in good condition which is good news and then said i have 40 years left - im only 19 like , that hit me emotionally too . life is like one kick in the balls after another for me , i really am sick of it at this stage .

I understand it must be upsetting for you. I was diagnosed with scoliosis when I was about 8. I wore a brace that started just below my chin and finished at my hips. The only time I took this off was to shower.

I am surprised they have only diagnosed you recently, as 19 is quite a late age. when do they think you developed it?. Do you know what the severity is? I thought by the time a person had finished growing, the condition would lesson, well, rather continue to worsen.

I am surprised that the doctor could give you a life span. Especially as you said your lung and heart are healthy which indicates the curvature is not to the point where it is crushing your organs, and if it was even close to this, your posture should of indicated years ago, the severity of the curvature.

I do believe this condition can be managable. I was also diagnosed with vertebral subluxation, which is a misalignment of the spinal joints (very costly to treat). My chiropractor told me I would be disabled by the time I was 60. I am 29 now. I think you should read as much as you can on the subject, and take as much care of yourself as you can.

I'm not going to sit around and wait to become disabled at 60. Look at excercise, diet eg, making sure you're getting enough calcium etc. There are also yoga teachers that specialise in scoliosis, obviously talk to your doctor about these things first. It is scary, keep positive though. This thing ruined my childhood, but I consider myself all in all to be a lucky, healthy person.

Now.....just got to get this SA under control .

Feel free to chat to me anytime you like about it.

regards

 

[ryan2022]

Hi, yep. I'm not sure how I got diagnosed with it, but I had it when I was younger. I used to have bad back spasms etc.. I still revert a little if I dont keep on it.

Mine wasnt really bad, but after a year or so of Chiropractor, I was back to normal.

Good luck, I would look into treatments, and find a good Chiropractor/ physical therapist. I'm surprised your doc was that fast to diagnose you like that.

All the best.

 

[diesel]

thanks for the support everyone . @ the silent singer - i only have 1 lung , i was born with a defective lung so it was removed , i assume you dont live as long with 1 lung but 60 is long enough really . i developed it because my left lung is over developed and huge , my left side of my back is also overderveloped ( according to doctor its way bigger than it can naturally ever be and is extremely powerful ) however my right hand side didnt develop correctly because of the lack of movement from no lung and therefore everthying pulled to the left including my spine . its been happening for 19 years .